Presented by Kim-Huong Nguyen, PhD, MSc, B.Econ

The social and economic costs of dementia are significant and in 2016 were estimated at AU$14.25 billion and worldwide costs in 2010 of US$604 billion. A range of interventions have been trialled to relieve symptoms in an effort to both extend the length of life and improve quality of life for people living with dementia. Cost utility analysis, where quality-adjusted life years (QALYs) are used to measure outcomes, has been the dominant method to decide whether or not a dementia intervention should be publicly funded. The AD-5D project, funded by the NHMCR’s Cognitive Decline Partnership Centre, aims at developing and valuing a dementia-specific quality of life descriptive system. The system was derived from the quality of life in Alzheimer’s disease (QOL-AD) instrument. We conducted online surveys of the Australian general population and interviews with people with dementia and their carers to understand how they value these five domains, from which a set of utility weights for the AD-5D have been developed. 

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Room 2007, Translational Research Institute