For many years the focus has been on “the cure”, without necessarily considering the psychosocial and long-term health effects of cancer treatment. These ‘late-effects’ can potentially be more significant than the acute complications experienced during curative treatment.

The Life and Health after Childhood Cancer (LACE) project will address these unmet health and research infrastructure needs by creating a national population-based data platform of childhood cancer survivors that will track survivors longitudinally. LACE will develop a composite picture of young people impacted by cancer by developing a powerful new data platform of childhood cancer survivors. LACE will enable families, health professionals, researchers and policy-makers access to population-based data on the late-effects (risk, incidence, severity, cost implications) from childhood cancer.

Partners

The research team includes academics and researchers from UQ, Cancer Council Queensland, University of Sydney, University of the Sunshine Coast, Australian & New Zealand Children’s Haematology/Oncology Group (ANZCHOG), Redkite, University of Western Australia, University of New South Wales, University of Tasmania, University of Adelaide, South Australia Health and Medical Research Institute, Murdoch Children's Research Institute, and key consumer investigators.

In the media: New study will harness digital solutions to improve long-term care for childhood cancer survivors - Centre for Health Services Research - University of Queensland